I'm glad you decided to take this step towards healing your Lichen Sclerosus and recovering your life.
I'm so freaking excited for you! 😄
This is just the beginning.
A plan empowers you as well as gives you confidence. When you have direction and know what to expect it removes anxiety and fear, which reduces stress. To heal Lichen Sclerosus, we must manage our stress.
Your team should help you create your plan, but remember you are in the driver's seat.
Information and education are also needed to create a successful plan. Not only do you need to have the general knowledge to lead, but your team members should be specialized, so they can provide the best options for your plan.
So how DO we get a great Team, Plan, and Community?
The First Step is to Get Informed
The first thing you need to do is get educated and gather information. If you don't know, how can choose and lead your team?
Remember you are building this team. Their job is to help you get better but you have to lead the way.
To choose the correct people, you need to have general knowledge. They need to be the experts. You have to trust they know what they're talking about. The only way to do that is by keeping informed and educated.
You need to be informed and educated to create a good plan as well. Your knowledge will help you determine what is the best approach for you.
That's one of the places Lichen Sclerosus Support Network comes in!
Not only do we give you practical everyday information, but we also give you the most up-to-date scientific facts. Because we're not only living it and speaking with hundreds of women living it, but we study it. We speak to the experts who are researching and caring for women like us every day.
Be sure to bookmark this page and check back occasionally because this list will change and grow as time goes on. Or better yet join our email list, so you stay up-to-date.
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Find out why we tear and how to use your steroid properly.
Learn all the Lichen Sclerosus symptoms so you know what to look out for.
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Create a plan to advocate for yourself
Now that you have the basics,
Let's move to step two of healing Lichen Sclerosus, creating a plan. The first part of creating a plan is deciding on the goal. What is it you want to accomplish?
This will be different for all of us. Getting clear on your destination is important because it will determine your path.
For some of it will simply be to stop itching. Others to stop having painful sex. Yet others will be to stop pain altogether.
I say it all the time, Lichen Sclerosus is a very individualized disease. We may suffer similar symptoms, but how and when they manifest will be different for each of us. Therefore our goals and path to wellness will be individualized as well.
So get clear on your goals. What do you visualize when you picture your Lichen Sclerosus healed? Describe it in words. Write it down.
I will be…when I heal my Lichen Sclerosus.
How will you feel? What will you be able to do?
That's where your Community comes in.
Your community/family/support system are the ones to give you that push when you start staggering. They're the ones who will help you see how far you've come when you feel like you haven't made any progress. They cheer you on when you make positive but hard decisions.
You have to fall back on your community when you just want to give up because you don't feel like you can do it anymore.
We got you.
Here at Lichen Sclerosus Support Network, we provide multiple communities, each one unique.
We're all at different stages in our healing journey, and with that comes different needs of the community. So try them out and see which is the right fit for you right now. You can always come back to others later or join multiple and get the best of all of them.
Not quite ready to speak to people about LS yet. No worries. We can have a community of two, me and you.
Each week I bring you my latest research or a guest to talk about an aspect of LS so you don't have to go searching. I bring you the straight talk without the medical jargon. Click Here to find out more.
If you think you want to hang with me subscribe to Lichen Sclerosus Podcast on your favorite podcast app. Don't know how? No worries, head on over to my Subscribe page.
There you can find out the latest podcast news, learn how to subscribe, or choose an episode and listen right there.
So I'll be your community. You can email me at firstname.lastname@example.org or DM me on Instagram @lichensclerosuspodcast. Let's talk. Shoot me a question or let me know what's going on with you. I'd love to hear from you.
If you'd like to stay up-to-date on everything going on at the Lichen Sclerosus Support Network. Be sure to signup for the weekly newsletter or check back here often because we've got many projects in the pipeline and you're not going to want to miss out.