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717 686 9414  |   support@lssupport.net

Hey!

I'm glad you decided to take this step towards healing your Lichen Sclerosus and recovering your life.
I'm so freaking excited for you! 😄
This is just the beginning.

LSSN logo, a teal heart and white letters reading LSSN through the heart with a purple background.

Okay, let's get to IT.

To heal Lichen Sclerosus, you need three things.

  • A Team
  • A Plan
  • A Community

Team

A solid team gives you confidence. They allow you to relax because you know if something goes wrong you have a place to go to get solutions or at the very least a plan.

Hopefully, you have a good doctor working with you already. They're just the second member of your team. You being the first.

Depending on your goal, your team may include a mental health professional, such as a Sex or regular Therapist, a Pelvic Floor Physical Therapist, and of course LSSN.

The important part to remember is they work for you. Your team is there to support you. If any part of your team is not lifting you up and helping you heal, physically or mentally, it's time to look for a replacement.

Plan

A plan empowers you as well as gives you confidence. When you have direction and know what to expect it removes anxiety and fear, which reduces stress. To heal Lichen Sclerosus, we must manage our stress.

Your team should help you create your plan, but remember you are in the driver's seat.

Information and education are also needed to create a successful plan. Not only do you need to have the general knowledge to lead, but your team members should be specialized, so they can provide the best options for your plan.

Community

The right community makes all the difference in whether a plan succeeds or fails. They are a huge part of the healing process. Your community is where you get feedback on your plan. They give you ideas you and your other team members hadn't thought of yet. They share their experiences and make you aware of what to look out for.

Communities are the cornerstone of your care. They are what hold you up when you're going through a rough patch. Your community will celebrate your wins as if they are their own. They hold you accountable and give you the fuel to keep going.

While teams and plans can change it's very hard to replace a good community. The right community will become your family. Whether you check in with them every day or once every couple of months it's like you never left. They rile around you and lift you.

So how DO we get a great Team, Plan, and Community?

Great question.
The First Step is to Get Informed

The first thing you need to do is get educated and gather information. If you don't know, how can choose and lead your team?

Remember you are building this team. Their job is to help you get better but you have to lead the way.

To choose the correct people, you need to have general knowledge. They need to be the experts. You have to trust they know what they're talking about. The only way to do that is by keeping informed and educated.

You need to be informed and educated to create a good plan as well. Your knowledge will help you determine what is the best approach for you.

That's one of the places Lichen Sclerosus Support Network comes in!

Not only do we give you practical everyday information, but we also give you the most up-to-date scientific facts. Because we're not only living it and speaking with hundreds of women living it, but we study it. We speak to the experts who are researching and caring for women like us every day.

Stay Updated

Be sure to bookmark this page and check back occasionally because this list will change and grow as time goes on. Or better yet join our weekly newsletter, so you stay up-to-date.

What you need to know?

At LSSN we inform and educate you in many ways. Teaching you how to heal Lichen Sclerosus is just one. Please look around the site and dig into the content you feel drawn to. The few pieces here are only what we believe everyone with LS should have.

The Basics.

Listen to podcast here:

Find out why we tear and how to use your steroid properly.


Learn all the Lichen Sclerosus symptoms so you know what to look out for.

Listen to podcast here:

Create a plan to advocate for yourself


Now that you have the basics,

Let's move to set two of healing Lichen Sclerosus, creating a plan. The first part of creating a plan is deciding on the goal. What is it you want to accomplish?

This will be different for all of us. It's important to get clear on your destination because it will determine your path.

For some of it will simply be to stop itching. Others to stop having painful sex. Yet others will be to stop pain all together.

I say it all the time, Lichen Sclerosus is a very individualized disease. We may suffer similar symptoms but how and when they manifest will be different for each of us. Therefore our goals and path to wellness will be individualized as well.

So get clear on your goals. What do you visualize when you picture your Lichen Sclerosus healed? Describe it in words. Write it down.

I will be…when I heal my Lichen Sclerosus.

How will you feel? What will you be able to do?

Speak it into existence.

Put it somewhere you will be able to read it every day to give you the strength to not give up. Because you will have your days. This will not always be an easy process. It can take a long time. Sometimes you may feel like you're not making any progress and you've tried everything but you have to keep going.

That's where your Community comes in.

Your community/family/support system are the ones to give you that push when you start staggering. They're the ones who will help you see how far you've come when you feel like you haven't made any progress. They cheer you on when you make positive but hard decisions.

Your community is what you have to fall back on when you just want to give up because you don't feel like you can do it anymore.

We got you.

Here at Lichen Sclerosus Support Network we provide multiple communities, each one unique.

We're all at different stages in our healing journey, with that comes different needs of community. So try them out and see which is the right fit for you right now. You can always come back to others later or join multiple and get the best of all of them.

Lichen Sclerosus
Support Virtual
Meetup

Are you ready to speak to people with LS? Hear the story of those who have healed their Lichen Sclerosus? Do you want to ask questions? Are you ready to tell your story?

Then this is the community for you.

We meet every other Saturday from 2-4 and 7-9 PM EST.

We'd love to meet you too.

Click Here if you want to learn more or if you're ready to signup Click Here.

Lichen Sclerosus
Podcast

Not quite ready to speak to people about LS yet. No worries. We can have a community of two, me and you.

Each week I bring you my latest research or a guest to talk about an aspect of LS so you don't have to go searching. I bring you the straight talk without the medical jargon. Click Here to find out more.

If you think you want to hang with me subscribe to Lichen Sclerosus Podcast on your favorite podcast app. Don't know how? No worries, head on over to my Subscribe page.

There you can find out the latest podcast news, learn how to subscribe, or choose an episode and listen right there.

So I'll be your community. You can email me at kathy@lssupport.net or DM me on Instagram @lichensclerosuspodcast. Let's talk. Shoot me a question or let me know what's going on with you. I'd love to hear from you.

The Lost Labia
Chronicles

Don't want to sit through a podcast? Oh. Okay. I won't take it personally.

Jaclyn is great. 🙄

Nah, I'm just playing. If I'm not your cup of tea or you don't have the time, you definitely should join Jaclyn's community. Or better yet join both!

The Lost Labia Chronicles is the story of Jaclyn's journey from excruciating sex and body dysmorphia to having sex without pain and loving and celebrating herself. She explains in detail where she was and lays the roadmap for how she got to where she is now.

So join Jaclyn's community and leave a comment under her blog post, email her at lostlabiachronicles@gmail.com, or DM her on Instagram @thelostlabiachronicles.

If you'd like to be notified when Jaclyn releases a new blog post, be sure to subscribe to her email list on the form below.

If you'd like to stay up-to-date on everything going on at the Lichen Sclerosus Support Network. Be sure to signup for the weekly newsletter or check back here often because we've got many projects in the pipeline and you're not going to want to miss out.