So Glad You Found Us!
As part of our recurring donors Lichen Sclerosus Support Network Membership, the LS Warriors group is a way to work through the mental effects of Lichen Sclerosus surrounded by people who understand and support you.
Benefits of being a part of this community:
As someone who's faced the fear and anxiety from a Lichen Sclerosus diagnosis, I can tell you it gets better.
You are not alone.
The LS Warriors group is a safe haven from all the noise on the internet. The noise of the medical websites with their medical terms and clinical list of symptoms. Safe from the images of disfigured vulvas that make us afraid to look at ourselves and lowers our self-esteem. A small quiet place off social media where it's easy to get lost and distracted.
We are a group of vulva owners like you, working toward managing our condition and getting back to living on our terms. We want to ensure we get the best care from our doctors. We're looking to minimize the effect Lichen Sclerosus has on our relationships. We want to be confident in our future and our quality of life, whether that's having children or being able to have sex multiple times a week.
Here's what members are saying:
I was diagnosed with LS mid October 2020. For the first six weeks I went through an extremely hard time. I was scared, anxious, depressed, frustrated and very lonely. I was exhausted from googling.
Then I found Kathy and LS Warriors!!
Being a part of this group has been invaluable for me and has helped me in many ways. I have learned so much about LS from them, from their knowledge and experiences. There are always new tips, videos, podcasts, virtual meet ups etc. If I have a question or am having a hard day my LS friends are always there for me.
LS Warriors has gotten me to where I am now ( which is a much better place) physically, mentally and emotionally and has become one of the most important things in my life.
I thoroughly enjoy being an LS member. Honestly, without them, I don't know how I would be getting through this
From some of our other members:
I have an entire group of women who know exactly what I’m going through. They are always there for me no questions asked.
Not only that, I have access to live interviews/Q&As with world-renowned doctors who specialize in vulvar disease. This group connected to me my current doctor, Dr. Goldstein, who has treated more LS patients than anyone in the world!
I’m so grateful for the information and support that I’ve gotten through this network.
Member since Jan 2022
So THANK YOU Kathy and the amazing women who curate, participate, and hold space for this group! I so appreciate you.
Hi everyone! I just wanted to take a few minutes to write an LSSN appreciation post.
I joined LS Warriors about a month ago, and it has been nothing short of life-changing for me. After so many years of feeling isolated and ashamed about having LS, and often being very secretive about it, it's been so empowering to see a community of women rallying together, sharing stories and wisdom, and supporting each other.
I think it has helped me move from a place of grief and paralysis to a place of action and curiosity. As much as having LS sucks, I'm starting to see it as an opportunity to connect with my body and learn about it deeply, in community with you all.
So THANK YOU Kathy and the amazing women who curate, participate, and hold space for this group! I so appreciate you.
Member since Sept 2022
Small but Family
By being a small group, we create genuine connections. There is trust that we have each other's best interests at heart. We cheer each other on while holding each other accountable. We can offer a kind word of support when you feel down but not let you slip into a negative spiral.
LS Warriors is a family. A community living a shared experience unique to those with LS.
Will you join our family?
Choose a tax-deductible* LSSN Membership donation option.