The Lost Labia Chronicles
Hi – Welcome to The Lost Labia Chronicles (aka, TLLC).
Do you have Lichen Sclerosus and struggle with the mental aspects of your diagnosis? Would you like to read stories that you can relate to? Do you want to read more about how to find a place of acceptance? Are you looking for a glimmer of hope that you can still live a fulfilling life despite Lichen Sclerosus?
Look no further!
The Lost Labia Chronicles (aka TLLC) is a blog created just for you!
You will find a home here at TLLC and find a human connection in what can be an isolating diagnosis. Each post is a step towards acceptance, resilience, and guide towards getting your life back to the way it was before you started having symptoms. You'll learn about working with pain, with anxiety, how to stop compulsively checking your vulva, and so much more.
What Will You Get From Reading TLLC?
- Learn how to manage pain through acceptance and commitment therapy principles.
- Work towards overcoming the different types of anxiety that come with a Lichen Sclerosus diagnosis.
- Acquire tips on how to work with vulvar dysmorphia.
- Learn how to reclaim your pre-Lichen Sclerosus life – including your sex life!
Briefly, TLLC will help walk you through the human side of Lichen Sclerosus, by addressing topics such as compulsive vulva checking and filling guilty about being unable to have penetrative sex. These are the kinds of things your gynecologist will not address with you.
My Diagnosis Story: Before TLLC
Hi, I'm Jaclyn, and before creating TLLC, I was struggling to accept and understand a diagnosis of a disease I had never heard of before.
My first symptoms were pain during sex; later, this progressed to vulvar tearing, burning, stinging, and itching. Critically, numerous medical professionals told me the pain I experienced was because I was small down there. Similarly, it was suggested to me that my partner was too big, or that the sex I was having was too rough. Moreover, I was told by dozens of doctor's there was nothing wrong with me and I just needed to relax.
At 31 years old the disease had progressed to the point where my vulvar skin was an off-white color, I had lost the majority of my labia minora and had clitoral phimosis. It took extreme changes to my anatomy to finally get a diagnosis.
Understandably, the first 9 months after my diagnosis I struggled with severe anxiety, depression, dysmorphia, shame, and disgust, to name but a few emotions/feelings.
Through sex therapy, somatic therapy, a support network of friends and family, I reached a place of acceptance. Currently, I am in a good place with my LS and hope to help others get there too.
I hope in sharing my story and experiences with Lichen Sclerosus to raise more awareness about LS so others do not have to have to lose their anatomy or feel like it's all in their head and struggle in pain, alone.
About Me: The Woman Behind TLLC
To my fellow Lichen Sclerosus warriors, we are not our diagnoses; we are not LS. We are complex and brilliant human beings with tons to offer to world and others around us. That said, here are some non-LS things about me.
I was born and raised in Montreal, Quebec, Canada, and moved to London, Ontario, Canada to pursue grad school at Western University.
I graduated with a Ph.D. in Philosophy of Neuroscience. Specifically, I looked at what it meant for information from different areas of science to fit together in such a way that a robust, strong epistemic claim is produced by asking how and to what extent claims about the mind-brain are corroborated in scientific practice.
I am also very interested in Buddhist philosophy.
During my graduate career, I volunteered on a sexual assault and crisis line at SACL (now ANOVA) in London, Ontario.
I’m a Taurus♉, 33 years old, and I live with my amazing husband in Toronto, Canada.
I’m into fitness (weightlifting🏋🏻♀️, yoga, Pilates), nature, camping, eating delicious plant-based food🌱, and meditation. Of course, I love to write!
If I had to choose my last meal it would be 12 PB & J sandwiches, with a different jam for each one. I love animals, especially pigs, koalas, whales, and elephants🐷🐋.
When I'm not outside being active or writing, I can be found re-watching Avatar: The Last Airbender (my favorite show ever) and The Mandalorian.