Want to know if you're in the right place?
Lichen Sclerosus Support Network is your place on the internet to find Peace of Mind, Confidence, and Support.
Peace of Mind
A central source of science based and practical information.
Confidence
Straight forward education on how to care for yourself.
Support
Community of people who understand what you're going through.
Who's Behind LSSN?
Lichen Sclerosus Support Network is built with you in mind. Because we are you.
We are a group of content creators who have Lichen Sclerosus. We've been where you are and know what you're going through.
By coming together, we share our individual voices united for a common cause. We each have our own style, story, and approach but our number one goal is to give you Peace of Mind, Confidence, and Support.
Kathy
Founder and Host
Welcome to LSSN. I hope you find everything you're looking for here. If you don't please let me know so I can find a way to provide it.
After going to multiple doctors for five years I was finally diagnosed with LS at the age of 40. Like many of you, I was given a prescription, told to use it when needed, and sent on my way.
I lived “normally” for two more years before my LS progressed and I went looking for answers. Unhappy with what I found I decided to bring other women the information I felt we needed.
Hence the birth of Lichen Sclerosus Podcast. Over the first year of the podcast, I craved a deep connection with my LS sisters.
FB groups are great but I wanted more. So I started to host monthly virtual meetups. They have now grown to biweekly meetings.
Through these new communities, I have met amazing women all looking for the same thing.
Connections.
Out of those new connections grew Lichen Sclerosus Support Network.
May you find connections, education, and hope on our site.
Jaclyn
Hi, I'm Jaclyn. I host The Lost Labia Chronicles. Before creating TLLC, I struggled to accept and understand this disease I had never heard of before.
My first symptoms were pain during sex, vulvar tearing, burning, stinging, and itching.
I struggled with severe anxiety, depression, dysmorphia, shame, and disgust, to name but a few emotions/feelings.
After building the right team of medical professions, lots of hard work, and finding my support system in Lichen Sclerosus Support Virtual Meetups I have been able to have pain-free multi-orgasmic sex multiple times a week.
I'm currently living my best life and am thankful I can give back through Lichen Sclerosus Support Network.
My mission is to provide the hope to women who are feeling the despair, anxiousness, and lack of understanding I was when I was first diagnosed.