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Want to know if you're in the right place?

  • Have you recently been diagnosed with Lichen Sclerosus and are looking for information?
  • Do you have Lichen Sclerosus and have been fighting it alone?
  • Did your doctor just hand you a prescription and send you out into the world without any direction?
  • Are you scared, angry, frustrated, or desperate about what Lichen Sclerosus means for your life?
  • Do you want information, education, and support concerning your Lichen Sclerosus?
  • Does someone you know or love have Lichen Sclerosus and you want to learn more to support them?

Lichen Sclerosus Support Network is your place on the internet to find Peace of Mind, Confidence, and Support.

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Peace of Mind

A central source of science based and practical information.

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Straight forward education on how to care for yourself.

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Community of people who understand what you're going through.

Who's Behind LSSN?

Lichen Sclerosus Support Network is built with you in mind. Because we are you.

We are a group of content creators who have Lichen Sclerosus. We've been where you are and know what you're going through.

By coming together, we share our individual voices united for a common cause. We each have our own style, story, and approach but our number one goal is to give you Peace of Mind, Confidence, and Support.


Founder and Host

Welcome to LSSN. I hope you find everything you're looking for here. If you don't please let me know so I can find a way to provide it.

After going to multiple doctors for five years I was finally diagnosed with LS at the age of 40. Like many of you, I was given a prescription, told to use it when needed, and sent on my way.

I lived “normally” for two more years before my LS progressed and I went looking for answers. Unhappy with what I found I decided to bring other women the information I felt we needed.

Hence the birth of Lichen Sclerosus Podcast. Over the first year of the podcast, I craved a deep connection with my LS sisters.

FB groups are great but I wanted more. So I started to host monthly virtual meetups. They have now grown to biweekly meetings.

Through these new communities, I have met amazing women all looking for the same thing.


Out of those new connections grew Lichen Sclerosus Support Network.

May you find connections, education, and hope on our site.

Image head shot of the author with brown hair tied up in a ponytail and a blue and white floral pattern dress.


Hi, I'm Jaclyn. I host The Lost Labia Chronicles. Before creating TLLC, I struggled to accept and understand this disease I had never heard of before.

My first symptoms were pain during sex, vulvar tearing, burning, stinging, and itching.

I struggled with severe anxiety, depression, dysmorphia, shame, and disgust, to name but a few emotions/feelings.

After building the right team of medical professions, lots of hard work, and finding my support system in Lichen Sclerosus Support Virtual Meetups I have been able to have pain-free multi-orgasmic sex multiple times a week.

I'm currently living my best life and am thankful I can give back through Lichen Sclerosus Support Network.

My mission is to provide the hope to women who are feeling the despair, anxiousness, and lack of understanding I was when I was first diagnosed.

We want to meet you

Have you signed up for the Lichen Sclerosus Support Virtual Meetups?

If not, what are you waiting for?

Come meet your community face-to-face. Share your story. Ask your questions. We're waiting.

By providing information education, and support our hope is you will find Resilience, Acceptance, and Hope.