About Lichen Sclerosus Podcast

The Lichen Sclerosus Podcast

Have you been diagnosed or think you have Lichen Sclerosus? Do you have questions? Have you been searching for all the information you need in one place? Do you want someone to talk to? If you said yes to any of these questions then you are in the right place.

As you explore the site you will find the most important information you need to know about Lichen Sclerosus and how it can affect you, resources to help you make decisions about your care, and community to share in your struggles and lighten your load because you are not alone.

Since starting the podcast I have helped many women get information and find a friendly ear to listen to their struggles and triumphs. Many have reached out through email or left reviews on podcast sites.

My Story

My name is Kathy. I have Lichen Sclerosus. Each week I interview an LS sister, an LS expert, or research an aspect of Lichen Sclerosus, tell you what I learned and how it has affected me. This podcast is our journal of learning about and living with Lichen Sclerosus. They are all of our stories and experiences. My aim is to build a community where we can talk and support each other, eventually affecting change and awareness.

I was diagnosed in 2018 but have suffered since 2013 after I had a hysterectomy. After many doctors misdiagnosed me, a nurse practitioner finally told me what I had. She did not tell me much else. I tried to live life as normal but two years later I started getting new symptoms and was freaked out. I did not know what was going on or who to talk to. So I started the podcast to pass on the information I found and let women know, they are not alone.

I have tried to create the website and community I wish was available when I got my diagnosis. My hope is that no woman will have to scour the internet reading scary antiseptic medical websites that do not relay the hope and positivity that can be found living with Lichen Sclerosus.

Yes, LS can be an awful disease but it can be managed and you can live a good and happy life. Do not despair. You are not alone and you will be okay. Join us in the Lichen Sclerosus Support Network to find more information, community, and sisterhood.