Lichen Sclerosus Support Network

Hey! Welcome to Lichen Sclerosus Support Network!

We’ve been waiting for you.

Yes, you!

You have Lichen Sclerosus, right?

You’re looking for information on what this is and what it means for your life, right?

You've mostly been going it alone and you're ready for that to change, right?

I thought so!

Relax. Release the tension you’ve been holding in your neck, shoulders, back, PELVIS.

We got you. You're not alone anymore.

What if I told you there is a way to reclaim your life from LS? Yes, your sex life too.

What if I told you there was a path toward acceptance and resilience.

Don’t believe me?

I can prove it.

women hugging each other — Photo by Anna Shvets on Pexels.com

My name is Kathy and I host Lichen Sclerosus Podcast and Lichen Sclerosus Support Virtual Meetups. I’ve spoken to many people who have found acceptance, resilience, and live happy normal lives. Yes, including sex lives.

I am one of those people. And I want to help you become one of those people too.

Now I’m not saying it’s going to be easy. As a matter of fact, it’s going to be hard work, both mental and physical. But if you’re truly ready to take back your life, like I know you can, we’re here to support you every step of the way.

Are you ready?

Start Here

What is Lichen Sclerosus Support Network?

LSSN was originally built as a way to support people with Lichen Sclerosus. It's grown into something so much bigger. LSSN is a nonprofit who's mission is to empower people with LS to get diagnosed earlier.

LSSN Nonprofit

We are a not-for-profit organization whose mission is to empower people with Lichen Sclerosus by providing evidence-based education. Our vision is a world where those affected by Lichen Sclerosus are informed, educated, and get diagnosed early.

Check out our new site

LS Warriors

Are you looking for a positive supportive community to help you deal with the mental, emotional, and physical effects of LS? Then you need to join LS Warriors. A family of warriors learning, fighting, and healing together in a positive private intimate space built for you.

Learn about LS Warriors

LS Support Virtual Meetup

Do you feel alone? How about worried, anxious, unsure? How would you like a safe place see how others overcome these struggles? Now’s your chance to do that! Join us in our next biweekly virtual meetup. Ask your questions, share your concerns and get peace of mind.

Virtual Meetup Info

Lichen Sclerosus Podcast

Lichen Sclerosus Podcast is our journal of learning about and living with Lichen Sclerosus. Each episode the host, Kathy, researches or speaks to someone about an aspect of LS and brings you the information so you don't have to go searching. Get your information with a side of hope and positivity.

Go to Podcast Page

What else can you find at LSSN?

Education, Information, and Resources

Education

Do you have a burning question and you need a quick answer? You've come to the right place. Check our growing FAQ page to see if we've got you covered.

Can't find what you're looking for? No problem drop us an email with your question and we'll get back to you as soon as possible.

Who knows? If we get the same question enough times we'll add it to the page.

Go to FAQ

Information

Interested in Lichen Sclerosus research? Coming soon a searchable database of up-to-date Lichen Sclerosus studies, trials, and research papers for you to read and provide for your medical professional.

We're always looking for more information. Have a research paper you would like to submit to the database?

Click the link below, fill out the form, and tell us about it. We'll check it out as soon as possible. Thanks!

Search through Research

Resources

Are you having a hard time finding quality care? Would you like someone knowledgeable about LS? Also coming soon a database of medical professionals referred by people with Lichen Sclerosus. So you can be confident you're going to the right place.

Want to recommend your medical professional? Click the link below and submit their information.

Search for Provider

Check out our Most Popular Post

Lichen Sclerosus Basics

What you need to know when first diagnosed.

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The Woman Behind TLLC

Get to know Jaclyn, the author of The Lost Labia Chronicles.

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Reproductive Age and Steroids

Find out the proper way to use your steroids.

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LS Support Virtual Meetup

So you don't have to fight alone anymore

Support from People who Understand

Who better to share your story with and get answers from then others going through the same thing.

Security

Not only will you be surrounded by friends, our meeting are held on a password protected secure platform. Your login information will be emailed to you within a week of the next meetup.

Strength in Numbers

There's something freeing and empowering about telling your story to a group who gets it. It will give you the strength and power to continue the fight.

Signup for Free Virtual Meetups

Are you searching for a community that can give you support and answers?

We've got you covered. Choose the amount of support you need.

24/7 Support Biweekly Support