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717 686 9414  |   support@lssupport.net

We're transforming Lichen Sclerosus Support Network

into a nonprofit organization. Our mission is to prevent the negative emotional and mental health effects that often comes with an LS diagnosis.

Hey! Welcome to Lichen Sclerosus Support Network!

We’ve been waiting for you.

Yes, you!

You have Lichen Sclerosus, right?

You’re looking for information on what this is and what it means for your life, right?

You've mostly been going it alone and you're ready for that to change, right?

I thought so!

Relax. Release the tension you’ve been holding in your neck, shoulders, back, PELVIS.

We got you. You're not alone anymore.

What if I told you there is a way to reclaim your life from LS? Yes, your sex life too.

What if I told you there was a path toward acceptance and resilience.

Don’t believe me?

I can prove it.

women hugging each other
Photo by Anna Shvets on Pexels.com

My name is Kathy and I host Lichen Sclerosus Podcast and Lichen Sclerosus Support Virtual Meetups. I’ve spoken to many people who have found acceptance, resilience, and live happy normal lives. Yes, including sex lives.

I am one of those people. And I want to help you become one of those people too.

Now I’m not saying it’s going to be easy. As a matter of fact, it’s going to be hard work, both mental and physical. But if you’re truly ready to take back your life, like I know you can, we’re here to support you every step of the way.

Are you ready?

What else can you find at LSSN?


Do you have a burning question and you need a quick answer? You've come to the right place. Check our growing FAQ page to see if we've got you covered.

Can't find what you're looking for? No problem drop us an email with your question and we'll get back to you as soon as possible.

Who knows? If we get the same question enough times we'll add it to the page.

Go to FAQ

Interested in Lichen Sclerosus research? Coming soon a searchable database of up-to-date Lichen Sclerosus studies, trials, and research papers for you to read and provide for your medical professional.

We're always looking for more information. Have a research paper you would like to submit to the database?

Click the link below, fill out the form, and tell us about it. We'll check it out as soon as possible. Thanks!

Search through Research

Are you having a hard time finding quality care? Would you like someone knowledgeable about LS? Also coming soon a database of medical professionals referred by people with Lichen Sclerosus. So you can be confident you're going to the right place.

Want to recommend your medical professional? Click the link below and submit their information.

Search for Provider

Check out our Most Popular Post

Lichen Sclerosus Basics
Lichen Sclerosus Basics
What you need to know when first diagnosed.
The Woman Behind TLLC
The Woman Behind TLLC
Get to know Jaclyn, the author of The Lost Labia Chronicles.
Reproductive Age and Steroids
Reproductive Age and Steroids
Find out the proper way to use your steroids.

LS Support Virtual Meetup

Support from People who Understand
Who better to share your story with and get answers from then others going through the same thing.
Not only will you be surrounded by friends, our meeting are held on a password protected secure platform. Your login information will be emailed to you within a week of the next meetup.
Strength in Numbers
There's something freeing and empowering about telling your story to a group who gets it. It will give you the strength and power to continue the fight.
Signup for Free Virtual Meetups

Our Valuable Content Creators

Passionate about educating people with Lichen Sclerosus. She brings awareness wherever she can. She currently host LS Podcast, the LS Support Virtual Meetups, and founded Lichen Sclerosus Support Network.
Having conquered severe Lichen Sclerosus in two years, she's on a mission to provide hope. As the author of The Lost Labia Chronicles, she is sharing her story to show you, you can win if you fight back and never give up.

Our Recent Post

How To Help Children Affected by Pediatric Lichen Sclerosus
https://youtu.be/n_kMuoUogL0 Introduction Today I am joined by the amazing dermatologist, Dr. Sandy Flann, who is an expert on pediatric Lichen Scler...
How to keep your quality of life with Lichen Sclerosus
How to keep your quality of life with Lichen Sclerosus
In this episode, I decided to take a little break from the interviews, and speak from the heart. This is something I felt compelled to speak on. I want to talk about not letting Lichen Sclerosus control your life; not letting it rob you of the vibrant and wondrous person you are.
What’s the best lube for Lichen Sclerosus?
What’s the best lube for Lichen Sclerosus?
https://youtu.be/P9edyDq6Ue0 Introduction And Excited Announcements Hey! Welcome! Have you ever wondered what lube is best for Lichen Sclerosus? P...

Are you searching for a community that can give you support and answers?